The photo above was prior to me moving to the ward.
As you will have probably guessed I tried everything I could to persuade them to let me go home but they weren’t buying into the idea. I was moved over to the Tower which is in the main part on the University College Hospital in London and I must admit is much better than the Lister.
I am in my second luxury room since they decided to move me at midnight! The reason they told the nurse in charge of my new ward was that I needed a room with oxygen? But I soon let him know that they must have got that bit wrong as I have never been on oxygen before and I couldn’t think why I would need or now. The room is large and very clean with its own ensuite shower room. The room has its own fridge, TV, Internet access, and bed settee so your relative can make up their own bed and stay the night if desired. Colin however chose to go home which I think was for the best. The doctor was very thorough and so far I have had a full examination, bloods taken, a chest and abdomen X-ray and an ultra sound scan of my liver, pancreas, gall bladder, kidneys, bladder and gall bladder. All are fine except for my liver which is no surprise as I have Polycystic Liver Disorder. This is a heredity disease which means my liver is coveted in cysts. Colin was very brave and observed the whole process. I do have some rather large cysts at the moment some of which are 9cm in diameter which could account for the pain. None however seem to be bleeding so that doesn’t account for my fever.
Over night my temperature has gone down so fingers crossed I may get to go home today. This is however a bit like staying in at least a 3 star hotel. The nurses couldn’t be more attentive and although I had missed lunch and supper they brought my a healthy NHS snack box which included a roll, butter, cheese, satsuma, yoghurt and apple juice.
I was pleased to see that the ward I was moved to was another haematology ward but this time for young adults, so even with my shaved head they must have thought I fitted that criteria.
I wasn’t however so happy with the suggestion of talking to the palliative care nurse about pain management. I was in fact quite taken aback and asked the doctor if I was seen as a palliative care patient as I had fears of being put on that Liverpool care pathway!
Please excuse any errors in today’s post as it has been written with ought my glasses which I stupidly left at home. Good job however that I keep an overnight bag in the car for such eventualities, so I do have most things I need.
Happy A great Good Friday.