Day four of second round of DT-PACE

I am feeling pretty exhausted and constantly nauseous but despite this all is going as well as could be expected. We are staying in the Cotton Rooms again and Colin was given a bit of a break as Kate came and acted as my carer on Friday night accompanying me to Ambulatory care on Saturday. It must have been pretty boring for her as I spent much of my time sleeping as the nurses attached various different drugs to my Picc line. Colin managed to get the lawns mowed whilst the weather was good.

I have been spoilt once again by good wishes and thoughtful gifts so Thank You so much for all of these. Although I am mostly surviving on Ensure drinks at the moment I have lots of goodies to look forward to.

The plan is to be back home again on Monday once my 24 hr chemo has finished and been detached from me. I will then return to the Cotton Rooms a few days later as my blood levels start to drop and I become neutropenic. This is the time that I am at my most vulnerable and must avoid any risk of infection so will avoid visitors. Hopefully this time round I won’t get an infection and be admitted to the hospital but being here I will feel more confident. Last time around I thought that my consultant was being a little over cautious but I soon found out how ill I could quickly become so I won’t be taking any chances. If a I develop a temperature before I get back here I need to get to an A&E department within 40 mins so I will need to attend my more local hospital which unfortunately I have little faith in. So probably around the 7th June, I will be booked into the a Cotton Rooms once again, for quite a few days and will be monitored closely in Ambulatory Care. Once my blood results have started to return to normal I will then be able to go back home. It will then be 2-3 weeks before returning to hospital for my Stem Cell transplant. I am trying not to think about this too much at the moment as the thought is really too scary to contemplate but it has to be done.

Emotionally I am trying to remain as strong and positive as I can as I know the importance of this on my physical healing but I can’t pretend it is easy. However with your support I am managing and looking forward to a holiday sometime in the future.

Thank you all once again for your positive wishes and thoughtful gifts.

Deborah xxx

Advertisements

5 thoughts on “Day four of second round of DT-PACE

  1. One day at a time Deborah, one day at a time. Extra hugs and thoughts to you, cousin, and inspiration. Nicola

    Sent from my iPad

    >

  2. Gosh, reading that comment Sounds really wrong! YOU are MY inspiration. Again, extra love and hugs, Nicola

    Sent from my iPad

    >

  3. Deborah, you continue to be an inspiration. All the little trivial stuff we go through in life is nothing in comparison to what you are living through. Continue to take care of yourself and know we think of you daily. XoXo
    Kathy

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s