Early to bed

Sleep just overcame me yesterday so I had to be guided from the sofa to the bed at 7.30pm. I did however keep quite busy during the day, sorting out bits and pieces and chatting to our various visitors. I think fatigue may be taking over as I don’t feel quite as bright and breezy as I did yesterday. I shall however succumb to it knowing that the chemicals are doing as they should inside my body. The idea is that the chemo kills off all my blood cells so that my body has to grow new baby cells or stem cells ready for collection next week. This means that some time over the next few days I will become neutropenic for a day or two, meaning that my body will be very weak and unable to fight infections due to my low white blood count, I am also more susceptible to picking things up due to my low red blood count and my blood won’t clot as easily due to the low number of platelets in my blood. Someday during the week I need to have a blood test to make sure all is happening as it should and have a better idea of the best day for the harvesting to take place.

So I shall rest most of the week, how boring is that! I do however think I will probably sleep through most of it. Anyway I always like to see people but please don’t visit if you have any kind of infection as I am likely to get it and then I may be in big trouble.

Off for another wee nap now, all this typing is pretty exhausting so don’t be surprised if you don’t hear from me for a day or two.

Deborah x

Things to remember when receiving chemo…

…it can be very dull and boring so take stuff to do! Before ever receiving chemo I hadn’t a clue of what to expect, but I did imagine it to be pretty traumatic and being strapped up to machines, whilst lying in bed. This however is not the case in my experience anyway, and yesterday was no different. Arriving at one of the biggest cancer centre’s in the country yesterday, we thought it must be closed. There was no busying around with people relaxing in chairs with beverages from the various food outlets, the place was practically empty with just one lonesome guy sitting behind a large reception desk, who pointed us towards the lift to ambulatory care. Ambulatory Care is a medical outpatient service, open 24 hours a day, to deliver services to those who would have normally require an overnight stay in hospital. Some people will come from home others will be staying in the hospitals own hotel. Can you believe a hospital has a hotel? Well the one at UCLH looks pretty good and is where I may stay during part of the time when I need the transplant. It is called the Cotton Rooms and you can have your partner stay there with you. Here is the link for those who may be interested.

So Colin and I sat for over three hours while the chemo was administered, as you can see I kept myself busy chatting to Kate on the phone.

It really is pretty easy going, the difficult bit is managing the side effects of the toxic drug they have just induced. Fingers crossed so far so good, yesterday we were both pretty tired so it was good to know that our little dog was being well cared for at his hotel in Weston aka Colin’s patents home.

Today I have woken up bright and breezy and have the job of doing some clearing out upstairs before Colin starts on sorting out the next room. This afternoon we look forward to catching up with our good friends and finding out about their trip to Norway.

The next rather scary part of treatment are the injections I supposedly have to give to myself over the next eight days.

I am hoping Sue will show me how and administer the first dose tonight, but I am not honestly sure I can do this to myself. The needle isn’t quite as small as I had imagined. I thought it would be more like the sort diabetics use, but this is at least half an inch long!!

We shall just have to see how things go. Maybe Kate will be up for it? Or one of my nice general nice friends will volunteer?

At least my body is tolerating the chemo pretty well so far, so I hope this good luck continuos.

Have a great Sunday

Deborah x