I must admit at the moment I am feeling pretty good and I am taking full advantage of it. It is likely that the accumulative effect of the chemotherapy will at some time start to take its toll but I am enjoying the energy I have whilst I can.
Our new work projects are going really well and we are ahead of the game at the moment. By the end of the week the new BrainBox resource will be ready to have a few test copies sent away for printing, and I am now on the second Step2 booklet.
Yesterday I had a lovely lunch and afternoon with my gorgeous grandson and enjoyed being pampered with a manicure from my lovely daughter.
Today I am off to the spa, I just hope they don’t make a big deal about me having a massage, I have already had to get another up to date medical letter to confirm it’s OK. If you research chemo and massage there is no evidence that points to it being anything but beneficial. The only problem is that if your immune system is lowered you are more likely to pick up infections, but that can happen anywhere.
I have taken up knitting which I haven’t done since I was a teenager. It’s just like riding a bike, you never really forget how and now I can’t stop. Apparently knitting in bed was one of the things I promised Colin when I first met him, so I have achieved one of his long dreamt of fantasies! I am starting with a basic cushion cover.
Please don’t forget Buttons for Bones. I desperately need all your spare buttons which will be used to raise funds for cancer research.
..it was to get a massage. Thank you to all of you who made comments on the Sanctuary Spa Covent Garden Facebook page. Honestly why couldn’t they just have said yes to my massage in the first place, I had a letter from my consultant stating it was OK for me to have a gentle massage. I explained this to the lady on the phone at Cambridge and she checked with the head of therapies and they definitely stated that it was in their policy not to give a massage to people with cancer until they had been in remission for six months. Colin then rang the head office at Covent Garden and the lady on the phone there was quite curt and stated the same, she was not compassionate in any way and just seemed to want to get Colin off the phone. It is funny that after the comments made on their Facebook page they changed their minds. A much more compassionate lady rang from their media office and apologised for the mix up. Apparently the policy does say if the person has a doctors note it is ok. So Kate and I are now going on April 5th, Kate will have a complimentary massage and we will both have complimentary manicures plus they are providing us with lunch, so I think it will be a good afternoon. Kate thinks I should have made more of a fuss and held out for more as it is pretty disgusting to treat people that way and I was very upset by it, but to tell the truth I am too tired and its not like me to make a fuss.
Today my good friend and fellow grumpy old woman (there are a few of us in the club) is coming to give me a manicure and a hand massage. My legs,arms and hands are very painful. I am on constant painkillers but surely I can’t keep taking them. I wish the pain would subside and I really hope this pain isn’t going to be permenant. I have an appointment with the consultant next week where we will discuss what happens next. I hope to have one last round of chemo and then to be told that I am definitely in remission. I will then just have the stem harvesting to do. Unfortunately that’s not as plain sailing as I first thought and it seems that I have to inject myself daily for about ten days. I think I will have to call upon my nurse friends for this part as I am not good with needles.
Thank you for your feedback about the Meday book. Colin is going to look in the loft today for my original scribbles and then I am going to crack on with it. I think it might be quite a slow process as these painkillers make me quite dopey and the pain makes it hard for me to concentrate for very long.
On the bright side the scarves I sold made £25.00 for Macmillan.
The 10% of the profits going to the Myeloma research charity will need to wait until I have sold the rest of the clothes and shoes before I can tell how much money I have made, so far I am about £800 in the red! I never was a great money maker, I blame the steroids as when I was on them I got a bit over excited buying stuff. I shall heve to a bit more careful when on my next round of chemo.
Well today is Wednesday and we are halfway through the week already. What a shame about the weather with so many people with plans for the Easter weekend. It looks like you will need to go abroad for any chance of seeing sunshine. Hopefully we will have a brilliant summer and it will be lovely and hot in time for my party on July 13th.